Wednesday, September 9, 2009

An update to the latest Seizure Saga

First I just have to type out the date because I think it's just really cool: 09/09/09.

Last week I played telephone tag with 3 of Mantha's doctors. After 3 days, it was determined that, although a marked change in sodium could cause seizures, Mantha's sodium level had not changed and therefor was not causing the seizures.

Her neurologist increased Mantha's medication by .5 cc's twice a day. That's the largest increase in meds she has ever had. We had to watch her over the long weekend and call the neurologist's office on Wednesday 09/09/09 (yes that's today and I had to sneak writing that in there again).

I watched her "like a hawk" and had her sisters and father watching closely as well. The "blankness" and "spacey" episodes stopped. Her vocabulary became complex again. I hadn't even really put together that she wasn't talking as much. She was *engaged* again with us at meals and during her school.

So for now, we stick with the increased medication and see the doctor for a follow up next month.

1 comment:

  1. Yay, Yay, Yay!!

    I'm so glad you don't have to go doing anything crazy this weekend. I did mean to ask you about that yesterday.