First I just have to type out the date because I think it's just really cool: 09/09/09.
Last week I played telephone tag with 3 of Mantha's doctors. After 3 days, it was determined that, although a marked change in sodium could cause seizures, Mantha's sodium level had not changed and therefor was not causing the seizures.
Her neurologist increased Mantha's medication by .5 cc's twice a day. That's the largest increase in meds she has ever had. We had to watch her over the long weekend and call the neurologist's office on Wednesday 09/09/09 (yes that's today and I had to sneak writing that in there again).
I watched her "like a hawk" and had her sisters and father watching closely as well. The "blankness" and "spacey" episodes stopped. Her vocabulary became complex again. I hadn't even really put together that she wasn't talking as much. She was *engaged* again with us at meals and during her school.
So for now, we stick with the increased medication and see the doctor for a follow up next month.
This is Mantha's story and the lessons we're learning as we look through her eyes. She has such an incredibly simple, sweet and wonderful way of looking at the world.
Yay, Yay, Yay!!
ReplyDeleteI'm so glad you don't have to go doing anything crazy this weekend. I did mean to ask you about that yesterday.